tag:blogger.com,1999:blog-162159259840188264.post8272386850954444536..comments2023-10-28T04:30:05.604-07:00Comments on The Incurable Runner: We're Not Stuckjpnairnhttp://www.blogger.com/profile/07465601373068594133noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-162159259840188264.post-84215236412628861752010-11-07T04:37:26.799-07:002010-11-07T04:37:26.799-07:00Hey...I was there too!
I left totally inspired.
...Hey...I was there too!<br /><br />I left totally inspired.<br /><br />It really helped me refocus. My daughter was dx over 5 years ago, and sometimes I feel bad going to the same people every year asking for money to support our walk team. This update is what I needed to get my brain back in the game.<br /><br />I'm completely inspired by your ride. Seriously.<br /><br />Thanks.Anonymoushttps://www.blogger.com/profile/16704298016041843194noreply@blogger.comtag:blogger.com,1999:blog-162159259840188264.post-21809555160250351802010-10-14T14:56:02.432-07:002010-10-14T14:56:02.432-07:00Jerry, few things....
1. About the pump
They made...Jerry, few things....<br /><br />1. About the pump<br />They made me wait a year before I could get on the pump. I remember I just couldn't wait. Then FINALLY I got on it, probably one of the top ten days of my life. Obviously my doctor and that doctor read the same book at med-school.<br /><br />2. About a cure<br />That's all I have ever heard. TOMORROW. Right. I am jaded too. I was told "by the time your 20 you'll be cured". Well I'm about to be 24, no cure. Not even close.<br /><br />3. Treatment VS. a cure<br />A lot of times, the doctor well then say "well there isn't a cure but treatment is better". That's too but it's like saying "the stuff tasted bad and we are making it taste better but it's still not Kobe Beef". If it's not a cure, it's not a cure. The doctors need to stop spinning it.Anonymoushttps://www.blogger.com/profile/01332701969962002492noreply@blogger.comtag:blogger.com,1999:blog-162159259840188264.post-78809903096456571782010-10-07T09:56:10.053-07:002010-10-07T09:56:10.053-07:00Jerry, excellent topic. I would be interested in k...Jerry, excellent topic. I would be interested in knowing that Endo's reasoning behind such a statement. <br /><br />In today's world of diabetes it makes clear sense that a newbie T1 would start out with a pump. Yes, it's very important to know how to use a syringe as emergency back-up (every Type 1 should know that), but there's no reason one should start off Old School only and then maybe later update to far better and more accurate technology. There's nothing novel in the use of a syringe. <br /><br />Thanks for sharing another great insight.Mike Fraserhttps://www.blogger.com/profile/09662185867851674125noreply@blogger.comtag:blogger.com,1999:blog-162159259840188264.post-70271014080860716892010-10-04T19:55:50.337-07:002010-10-04T19:55:50.337-07:00Thanks everyone for your comments.
Jonathan,
That&...Thanks everyone for your comments.<br />Jonathan,<br />That's very good to hear about the trial you're in going so well.<br />I think there's a possibility that if the immune system problem can be solved, it will cure a remarkable number of long term type 1 diabetics.<br />A recent study of diabetics who had gotten the fifty year medal from Joslin found that most of them were still producing a small amount of insulin. The pancreas apparently keeps trying to produce beta cells even as the immune system is destroying them.<br />The same thing has been observed in diabetic mice. Researchers were surprised when they were simply trying to correct the immune system that insulin production spontaneously returned.<br />We'll see. Thanks for sharing.jpnairnhttps://www.blogger.com/profile/07465601373068594133noreply@blogger.comtag:blogger.com,1999:blog-162159259840188264.post-37662607426661053372010-10-04T19:30:17.360-07:002010-10-04T19:30:17.360-07:00I think it is important to look at a cure two ways...I think it is important to look at a cure two ways; one is curing those who already have type 1 diabetes, and the other is curing those who will get diabetes in the future. Currently the scientists are getting closer to curing the disease for those who will get it in the future. I was diagnosed last October and was able to get into a stage 3 clinical trial where they implanted antibodies for eight days. These antibodies are supposed to protect what is left of my beta cells and retrain my t-cells to quit attacking my beta cells. I have been insulin free for seven months. It is too early to tell if it is a crazy honeymoon period or if it is truly the drug but I am a believer. As a stage 3 trial this could be on the market in a matter of years. It may not by itself be the cure but it is a good start. And this trial was funded by the JDRF. Here is an article about a similar drug in Popular Science last year: <a href="http://www.popsci.com/science/article/2010-02/rebooting-body" rel="nofollow">Link text</a><br />I think the trouble is helping those who have already lost all of their beta cells. I think that sadly we are a lot farther off in that regard.Jonathannoreply@blogger.comtag:blogger.com,1999:blog-162159259840188264.post-23208317601086723002010-10-04T10:13:49.718-07:002010-10-04T10:13:49.718-07:00I'm in the same vote about being jaded as I...I'm in the same vote about being jaded as I've heard all about the "cure around the corner" for 23 years now. And re: the doctor's theory about starting on needles first, I agree that's kind of messed up. I was on needles for more than 22 years and for me, the needles were more a really good guessing game than 100 per cent accuracy. Ten months into being on the pump, it's still a huge learning process for me that I haven't yet mastered, but I can see how much better it can be once I do finally master it.Katiehttp://www.princessofpavement.comnoreply@blogger.comtag:blogger.com,1999:blog-162159259840188264.post-4575800631473103652010-10-03T14:33:49.139-07:002010-10-03T14:33:49.139-07:00I agree with you. I have become jaded and tend to...I agree with you. I have become jaded and tend to disregard comments made about a cure. Although I don't think one will come soon, it is something I hope for.Queeniehttps://www.blogger.com/profile/07680939334173748186noreply@blogger.comtag:blogger.com,1999:blog-162159259840188264.post-89204576010615696942010-10-03T07:56:35.940-07:002010-10-03T07:56:35.940-07:00I just learned about InsulinDependence a couple of...I just learned about InsulinDependence a couple of month ago on a flight to Colorado Springs. I meet one of the board members and will be having them on my show in the next couple of months. Great organization!Chrishttps://www.blogger.com/profile/00568688841819816336noreply@blogger.com